
Cerebellar Ataxia Registry Australia
FAQs
What is CARe Australia?
The Cerebellar Ataxia Registry (CARe) is a list of people willing to be contacted for participation in clinical trials and research studies, including:
People with cerebellar ataxia
People without cerebellar ataxia (friends, family, etc) to serve as comparison participants
Why have a registry?
Knowing who is available helps researchers plan new studies and funding allocations
A registry can attract new clinical trials from drug companies
Efficiency linking researchers to patients improves research speed and effective use of limited research funds
What happens to my information?
When new studies are launched, eligible people will be contacted with more information. You can say Yes or No to any invitation
Only researchers with approval from official ethics review boards will have access
You may be contacted often, or not at all. But registering ensures you are counted!