What is CARe Australia?

• The Cerebellar Ataxia Registry (CARe) is a list of people willing to be contacted for participation in clinical trials and research studies, including:

  • People with cerebellar ataxia

  • People without cerebellar ataxia (friends, family, etc) to serve as comparison participants

Why have a registry?

• Knowing who is available helps researchers plan new studies and funding allocations

• A registry can attract new clinical trials from drug companies

• Efficiency linking researchers to patients improves research speed and effective use of limited research funds

What happens to my information?

• When new studies are launched, eligible people will be contacted with more information. You can say Yes or No to any invitation

• Only researchers with approval from official ethics review boards will have access

• You may be contacted often, or not at all. But registering ensures you are counted!